One Hundred-Twenty-First Care Page Post

Josiah’s Updates

Josiah is In-Dwelt by Christ

Posted Aug 3, 2013 7:09pm

Before leaving Josiah this evening he was privy to my side of a pretty emotional conversaion with Michael over the room phone. Since we haven’t seen each other face to face except for briefly when he came visiting with B, C, and Amanda (my first “night” at the hotel, when I set the alarm and only got an hour of sleep so that I could see most of my family, albeit however briefly (and since all subsequent contacts so far have been phone only that in-person sleep-deprived time has had to be sufficient) we have had many emotional things to share with each other.

My kids aren’t used to seeing me cry (that’s not on my Greatist Hits List as to how I live my life). In fact at our house 9-11-01 is sometimes called “the day that Mommy cried” because I’d only turned on the TV after Michael called, and then just in time to see the second tower fall on live TV not having seen sufficient coverage to even know what was happening then…

Anyway, Josiah is a very tender-hearted person, and has been very compassionat toward others most of his life. This is especially telling in that as a person on the Autism Spectrum, the very nature of that condidtion is abundant self-focus. I’m not sure if he could actually hear my words, but he could catch my tears and the hushed and breathless town of my voice as I shared deeply personal and emotionally charged and historically burdonsome ubiquitous baggage issues that the stress and sleep-deprivation and close quarters of this current marathon have yielded.

Periodically I’d look at Josiah and his face would be screwed up in pain and sometimes he would begin sobbing aloud. And this was only because he was in his own very uniques and guileless way bearing my burden in love.

In the Kingdom of God it is Josiah who is the True Warrior Heart and the rest of us seemingly “normal” people who dwell in the land of Special Needs!

 

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Posted Aug 13, 2015 12:07am

Private message

Thank you for sharing these insights. It can be so challenging to see the “deficits” in our children as positives. My son with special needs is a very complex individual with many issues from medical and behavioral/developmental/education arenas. Two years ago, when he was hospitalized for a Liver Transplant, he overheard me having an intensely emotional (not my usual mode, thankfully!) conversation with my husband over the phone. Even though he only heard my half of the conversation he was so overwhelmed by my emotional pain that he ended up sobbing in empathy (when he was lying in his ICU bed hooked up to various tubes and machines post-transplant); he was overcome with my pain so that it transcended his own significant discomfort.

I posted about this experience on the medical blog I write (primarily) about his needs and talked about how he was In-dwelt by Christ…and in a way that likely no one without Special Needs would ever experience. It’s like in some ways there is no veil between him and The Eternal One. He exhibits a childlike faith and trust in our Heavenly Father in a way that I struggle to comprehend, let alone emulate. He is a humbling challenge to parent…

If you care to read about his journey please check out the Jazzman CarePage here:
http://www.carepages.com/carepages/JournalingForTheJazzman

Here’s a quote about my special son Josiah’s way of showing Christ’s love to me during his Transplant Surgery Hospitalization:

“Anyway, Josiah is a very tender-hearted person, and has been very compassionate toward others most of his life. This is especially telling in that as a person on the Autism Spectrum, the very nature of that condition is abundant self-focus. I’m not sure if he could actually hear my words, but he could catch my tears and the hushed and breathless tone of my voice as I shared deeply personal and emotionally charged and historically burdensome ubiquitous baggage issues [with my husband over the phone] that the stress and sleep-deprivation and close quarters of this current marathon have yielded.

Periodically I’d look at Josiah and his face would be screwed up in pain and sometimes he would begin sobbing aloud. And this was only because he was in his own very unique and guileless way bearing my burden in love.

In the Kingdom of God it is Josiah who is the True Warrior Heart and the rest of us seemingly “normal” people who dwell in the land of Special Needs!”

This post was from the in-patient dialogue during his transplant hospitalization found at this page of our medical blog, fyi…

http://www.carepages.com/carepages/JournalingForTheJazzman/updates/3556028

Many Blessings In Christ! Thank you for posting about these important issues that Special Needs families encounter and wrestle with. I greatly appreciate the dialogue and encouragement!

Valerie Curren

This is a copy of a posting I put on a Christian Special Needs Parenting Website…seemed apropos…don’t know if my comment, as written, will survive moderation, but here is the original post I was responding to…FYI…XO…

http://specialneedsparenting.net/what-our-kids-cant-do/#comment-155380

I copied all this info in an email to Michael, for my records too…

 

Posted Aug 3, 2013 10:13pm

Private message

Continued prayers Val, for you all, I have tears flowing each time I check in to Care Pages to see how Josiah is doing, and read your posts. Your entire family including your parents, are such awesome testimonies of God.. May every day be a better day.. God Bless!

Maria Powers

 

Posted Aug 3, 2013 9:02pm

Josiah, you inspire us! I know I need
some of YOUR COURAGE!!!
WE LOVE YOU!!! Shirley Alderman

 

 

Posted Aug 3, 2013 8:52pm

Selah! Thinking deeply at such an insight re:a very unique & complicated grandson of my heart. It is easy to remember holding him in Kangaroo style (skin to skin) when he was hardly bigger than a small doll while Val nursed his twin brother who weighed in at more than twice his weight. Guess we have all come a long way since then!

 

 

Posted Aug 3, 2013 7:57pm

thank you for sharing this incredible insight and wisdom and love

 

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